We have just received approval to commence one of the largest clinical studies of patients with Birdshot Uveitis in the UK.
The Birdshot Dataset Study (BIRD-SET) has just opened and will run until the end of 2024.
It aims to generate one of the largest combined research datasets in Birdshot to greatly advance our understanding of the disease and how patients respond to treatment.
All participants will be invited to provide a saliva sample for genetic sequencing, to contribute their medical history and eye imaging data, as well as a blood sample to biobank for future research.
Some participants starting new immunosuppression treatments, will be asked to provide additional blood samples to trial a new test that could allow us to predict whether individuals will respond to the medication even before they start it.
We will also be testing a new non-invasive imaging technique in Birdshot that could identify how well the retina is functioning. This could supplement or replace current monitoring approaches such as fluorescein angiography or electroretinography.
The study is receiving support from Regeneron Genetics Centre LLC, USA, Moorfields Eye Charity and NIHR Moorfields Biomedical Research Centre for Ophthalmology. The Chief Investigator is Dr Colin Chu (Moorfields and UCL) and the Principal Investigator at Birmingham is Dr Balini Balasubramaniam (UHB). We have also had valuable input and support from the Birdshot Uveitis Society.
If you are a patient and would be interested in receiving more information to participate, please email firstname.lastname@example.org
Your interest can also be directly registered at (https://research.moorfields.nhs.uk/) but note this link does not work on all internet servers.
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Updated February 2024